I started this post Friday, Sept. 18th.
Before I tell you what IT is, I have other things to say first.
For YEARS, we’ve dealt with seizures. YEARS! People always ask, “How do you do it?”. My answer, “God”.We trust in Him. He gives us peace. We know He has a plan for Austin and we follow it. We do what we gotta do. This doesn’t mean that I am fine with it. This doesn’t mean that I don’t worry, get sad or mad. I DO! Believe me, I DO!
This is a long hard road! Some may wonder why we don’t pursue other doctors, clinics, etc? When you have a special needs child who has seizures, you live day by day. Putting one foot in front of the other. Survival mode if you will. However, we were the ones who told the doctors what was causing him to have seizures (certain foods, drinks), only to get strange looks. Lately it was found out there was something wrong. Genetic syndromes have already been ruled out, leaving some type of metabolic disorder. Yet, still no answer as to what type and so on…I finally (with the help of a great friend) got it in me to research other options. CeCe was on her computer, I was on mine. Sending links and contacts back and forth. Even when I would read about all of the metabolic disorders, they still didn’t fit Austin. Then, BAM! I found this…PLEASE, you have to read this!
http://www.drlwilson.com/Articles/epilepsy.htmOH MY HEAVENS! THIS IS IT! This article completely describes Austin! Anthony, myself and the kids sat around the kitchen table as we read it aloud in complete amazement! It’s like we struck gold! We just kept saying, “THIS IS AUSTIN!”. So I then quickly sent the link to CeCe as she was about to send me the SAME THING! I then sent the link to our neurologist and said that this is IT! I also sent it to his teacher and he told me this morning that of course it sounds like Austin. I still just shake my head! Now, we just need to do the hair follicle test, see a doctor that will help us set a plan up, and I truly believe this will help reduce the amount of seizures or completely rid them! I can NOW see a light at the end of the tunnel!!! Thank you for you prayers. I kept saying that night that those prayers that were for God to show us the direction to go for healing Austin…well, folks, they were ANSWERED! Again, thank you! Especially to my “researcher, stalker, kick in the butt” friend, CeCe! As always, I’ll keep you posted!
We have a lot of work ahead of us, but this has to be the right direction! It just has to!
To all my face book friends: You’ll find the answer to my status in that article(the distilled water!).